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Q7-48: Laboratory Values at Diagnosis

Comprehensive Disease-Specific Manuals » 2015/2115: Juvenile Myelomonocytic Leukemia (JMML) » 2015: JMML Pre-HCT » Q7-48: Laboratory Values at Diagnosis

Report findings at the time of diagnosis; if multiple studies were performed prior to the institution of therapy, report the latest values prior to first therapy. Questions 7-8: WBC Indicate whether the white blood count (WBC) was “known” or “unknown” at the…

Q24-32: History of Epstein Barr Virus (EBV) Infection

Comprehensive Disease-Specific Manuals » 2034/2134: X-Linked Lymphoproliferative Sydrome (XLP) » 2034: XLP Pre-HCT » Q24-32: History of Epstein Barr Virus (EBV) Infection

Question 24: Is there a history of EBV infection? Epstein-Barr virus (EBV) is one of the human herpes viruses (Herpesviridae family). It is the virus that causes infectious mononucleosis, commonly referred to as “mono.” XLP may present as an exaggerated immune…

Q1-6: Serological Evidence of Prior Hepatitis Exposure / Infection – Recipient

Infection & Miscellaneous Manuals » 2047 / 2147: Hepatitis Serology » 2047: Hepatitis Serology Pre-HCT » Q1-6: Serological Evidence of Prior Hepatitis Exposure / Infection – Recipient

Question 1: Specify and/or confirm previous Hepatitis B surface antigen (HBsAg) testing performed and reported on the Form 2000 – Recipient Baseline Data The hepatitis B surface antigen is a protein expressed on the surface of the hepatitis B virus. Its presence in…

Q24-75: Laboratory Studies at Diagnosis

Comprehensive Disease-Specific Manuals » 2019/2119: Waldenström’s Macroglobulinemia (WM) » 2019: WM Pre-HCT » Q24-75: Laboratory Studies at Diagnosis

Report findings at the time of diagnosis. If multiple studies were performed prior to beginning therapy, report the latest values prior to the start of treatment. Questions 24-25: Absolute lymphocyte count Indicate whether the lymphocyte count was “known” or…

Q59-74: History of Infection at Any Time Prior to the Preparative Regimen

Comprehensive Disease-Specific Manuals » 2039/2139: Hemophagocytic Lymphohistiocytosis (HLH) » 2039: HLH Pre-HCT » Q59-74: History of Infection at Any Time Prior to the Preparative Regimen

Specify documented infection(s) associated with HLH. Question 59: Was an infection documented? Indicate if an infection associated with HLH was present at any time prior to the start of the preparative regimen. If the recipient developed an infection associated with…

Q1-22: Disease Assessment at Diagnosis

Comprehensive Disease-Specific Manuals » 2039/2139: Hemophagocytic Lymphohistiocytosis (HLH) » 2039: HLH Pre-HCT » Q1-22: Disease Assessment at Diagnosis

Question 1: Is this recipient a registered participant in the United States Immunodeficiency Network (USIDNET)? The United Stated Immunodeficiency Network (USIDNET) is a research consortium studying primary immune deficiencies. They maintain a registry of primary…

Q1-9: Serological Evidence of Hepatitis Exposure / Infection – Recipient

Infection & Miscellaneous Manuals » 2047 / 2147: Hepatitis Serology » 2147: Hepatitis Serology Post-HCT » Q1-9: Serological Evidence of Hepatitis Exposure / Infection – Recipient

Question 1: Hepatitis B core antibody (HBcAb) The total hepatitis B core antibody refers to both IgG and IgM antibodies produced by the body in response to the presentation of the core antigen by liver cells. Since core antigen is present only in infected liver cells…

2016 Manual Updates

Getting Started » Getting Started » 2016 Manual Updates

December 2016 August 2016 July 2016 June 2016 April 2016 March 2016 February 2016 January 2016 !Hyperlinks Please note, hyperlinks on this page will not work for any manual sections which have been retired and / or replaced by new versions. December 2016 Date…

Q52-104: Disease Assessment between Diagnosis and the Start of the Preparative Regimen

Comprehensive Disease-Specific Manuals » 2034/2134: X-Linked Lymphoproliferative Sydrome (XLP) » 2034: XLP Pre-HCT » Q52-104: Disease Assessment between Diagnosis and the Start of the Preparative Regimen

Question 52: Was HLH present? HLH is an abnormal proliferation of macrophages and histiocytes that leads to the phagocytosis of healthy circulating blood cells. Indicate if the patient developed HLH at any time after diagnosis but prior to the start of the preparative…

Q1-32: Disease Assessment Since the Date of Last Report

Comprehensive Disease-Specific Manuals » 2039/2139: Hemophagocytic Lymphohistiocytosis (HLH) » 2139: HLH Post-HCT » Q1-32: Disease Assessment Since the Date of Last Report

Indicate which of the following clinical features and laboratory findings were present on the most recent evaluation since the date of the last report. For values assessed multiple times since the date of the last report, report the most recent results. Question 1:…

Q1-23: Disease Assessment at Diagnosis

Comprehensive Disease-Specific Manuals » 2034/2134: X-Linked Lymphoproliferative Sydrome (XLP) » 2034: XLP Pre-HCT » Q1-23: Disease Assessment at Diagnosis

Question 1: Is this recipient a registered participant in the United States Immunodeficiency Network (USIDNET)? The United Stated Immunodeficiency Network (USIDNET) is a research consortium studying primary immune deficiencies. They maintain a registry of primary…

2015 Manual Updates

Getting Started » Getting Started » 2015 Manual Updates

December 2015 September 2015 August 2015 July 2015 June 2015 May 2015 !Hyperlinks Please note, hyperlinks on this page will not work for any manual sections which have been retired and / or replaced by new versions. December 2015 Date Manual Section…