CIBMTR conducts Health Services Research that complements activities of the Health Services and International Studies Working Committee and the Late Effects and Quality of Life Working Committee, and requires different resources than CIBMTR Working Committee studies.
Examples of health services research focus areas include:
- Value and health economics of transplant and cellular therapy
- Healthcare disparities in access to and outcomes of transplant and cellular therapy
- Survivorship, patient-reported outcomes, and quality of life among recipients of transplant and cellular therapy
- Treatment decision-making for patients and health professionals
- Translation of research into clinical practice
Learn more about health services research using the links below:
- Health Services Research: AcademyHealth, governing body for HSR
- Patient-Centered Research: Patient-Centered Outcomes Research Institute (PCORI)
- Join relevant American Society of Transplant and Cellular Therapy Special Interest Groups: Value and Health Economics, Survivorship, Biobehavioral Research, Supportive and Palliative Care
Propose a Study or Request Research Support
- Propose a study or request support for analysis of claims data, survey research, or qualitative (focus groups, interviews) research using the HSR Study Request Form.
Completed Studies
| Costs of autologous and allogeneic hematopoietic cell transplantation in the United States: A study using a large national private claims database |
Published |
| Pilot study of patient out-of-pocket costs of hematopoietic cell transplantation* |
Published |
| Barriers to participation in hematopoietic cell transplant clinical trials for sickle cell disease |
Published |
| Barriers to accessing healthcare for rural transplant recipients |
Published |
| Allogeneic transplant physician and center capacity in the US |
Published |
| Evaluating patient satisfaction with the National Marrow Donor Program's Office of Patient Advocacy |
Published |
Variation in Medicaid
coverage for hematopoietic cell transplantation |
Published
|
Engaging patients in setting
a patient-centered outcomes research agenda in hematopoietic cell transplantation
| Published |
Burnout, moral distress,
work-life balance, and career satisfaction among hematopoietic cell transplantation
professionals | Published |
What do transplant
physicians think about palliative care? A national survey study
| Published |
Easy-to-Read informed
consent form for hematopoietic cell transplantation clinical trials: Results
from the Blood and Marrow Transplant Clinical Trials Network 1205 Study. | Published |
Tailoring a survivorship
care plan: Patient and provider preferences for recipients of hematopoietic cell
transplantation. | Published |
Randomized controlled
trial of individualized treatment summary and survivorship care plans for
hematopoietic cell transplantation survivors
| Published |
| Translation of clinical research into practice: An impact assessment of the results from the Blood and Marrow Transplant Clinical Trials Network Protocol 0201 on unrelated graft source utilization | Published |
Patient housing
barriers to hematopoietic cell transplantation: results from a mixed-methods
study of transplant center social workers
| Published |
Caregiver
availability and patient access to hematopoietic cell transplantation: social
worker perspectives inform practice
| Published |
Information needs for
treatment decision making of hematopoietic cell transplant patients 65 years or
older and caregivers
| Published |
Transplant provider and
center factors and outcomes of hematopoietic cell transplantation
| Published |
| Payer-partnered approach to community-based referral for hematopoietic cell transplantation (HCT) | Submitted |
Reimbursement, service utilization, and outcomes of allogeneic
hematopoietic cell transplantation for patients 65 and older with acute myeloid
leukemia in Medicare | Submitted
|
Health care reimbursement,
service utilization, and financial burden among Medicare beneficiaries with myeloma
receiving autologous hematopoietic cell transplantation in inpatient and outpatient
settings1
| Submitted |
Perceptions, practice
and service needs for hematopoietic cell transplant unrelated donor search and selection
(National Marrow Donor Program®/Be The Match® Histocompatibility Advisory
Group)
| Submitted |
*Conducted in collaboration with the Health Services and International Studies Working Committee.
1Research conducted in partnership with Kansas University
Studies in Progress
Characteristics of
high- and low-performing allogeneic transplant centers
|
Protocol Development
|
Patient perspectives
on palliative care1
| Protocol Development |
Access to transplant
for patients with acute myelogenous leukemia in the state of Virginia2
| Protocol Development |
Health care utilization
and costs associated with patients with sickle cell disease enrolled in Medicaid
| Protocol Development |
Linking the Center
for International Blood and Marrow Transplant Research (CIBMTR) Registry to the
California Cancer Registry, Vital Statistics, and Hospital Patient Discharge database
to study adverse effects and survival following hematopoietic cell transplantation3
| Protocol Development |
| INSPIRE: A multicenter randomized controlled trial integrating health informatics in a scalable stepped care self-management program for survivors after hematopoietic cell transplantation4 |
Accrual |
| Patient perceptions of important clinical trials outcomes5 | Accrual
|
Medicaid coverage for
hematopoietic cell transplantation in sickle cell disease patients: A policy analysis
| Accrual |
Hematopoietic cell transplantation
for older adults practice survey6
| Data Collection |
Research conducted in partnership with: 1Massachussetts General Hospital, 2University of Virginia, 3California Cancer Registry, 4Fred Hutchinson Cancer Research Center and CIBMTR RCI BMT, 5Fred Hutchinson Cancer Research Center, 6Moffitt Cancer Center, and 7University of Florida.
For further information, contact:
Lih-Wen Mau, PhD, MPH
Investigator, Health Services Research Program
Email: lmau@nmdp.org
Phone: (763) 406-8497
