CIBMTR conducts Health Services Research, which complements activities of the Health Services and International Studies Working Committee, and conducts health services and policy research that requires different resources than CIBMTR working committee studies.
Examples of health services research focus areas include:
- Economic aspects of transplant
- Survivorship and quality of life among transplant recipients
- Teatment decision-making support for patients and health professionals
- Healthcare disparities in access to and outcomes of hematopoietic cell transplantation
The Health Services Research Annual Report provides comprehensive information on the program, activities, and publications.
Program Studies
Learn more about Health Services Research studies using the links below:
- Health Services Research: AcademyHealth, governing body for HSR
- Patient-Centered Research: Patient-Centered Outcomes Research Institute (PCORI)
- Request support for analysis of claims data, survey research, or qualitative (focus groups, interviews) research or propose a study/evaluation using the HSR Study Request Form.
- Join the American Society of Blood and Marrow Transplantation (ASBMT) HCT Value and health Economics or Survivorship SIGs
Completed Studies
| Costs of autologous and allogeneic hematopoietic cell transplantation in the United States: A study using a large national private claims database |
Published |
| Pilot study of patient out-of-pocket costs of hematopoietic cell transplantation* |
Published |
| Barriers to participation in hematopoietic cell transplant clinical trials for sickle cell disease |
Published |
| Barriers to accessing healthcare for rural transplant recipients |
Published |
| Allogeneic transplant physician and center capacity in the US |
Published |
| Evaluating patient satisfaction with the National Marrow Donor Program's Office of Patient Advocacy |
Published |
| The need for Essential Health Benefits for complex medical procedures: A case study of Medicaid coverage for transplant |
Submitted |
*Conducted in collaboration with the Health Services and International Studies Working Committee.
Studies In Progress
| The long-term financial impact of allogeneic transplant on patient and family: A pilot study |
Data Analysis |
| Transplant provider and center factors and outcomes of hematopoietic cell transplantation |
Data Analysis |
| Identifying hematopoietic cell transplantation housing and caregiver challenges and potential interventions |
Data Analysis |
| Personalized survivorship care plans: A qualitative study |
Data Analysis |
| Easy-to-read informed consent forms for hematopoietic cell transplantation clinical trials (Blood and Marrow Transplant Clinical Trials Network 1205 Study) |
Protocol Development |
For further information, contact:
Ellen Denzen, MS
Senior Manager, Health Services Research, NMDP/Be The Match
Email: edenzen@nmdp.org
Phone: (612) 884-8562
