CIBMTR conducts Health Services Research, which complements activities of the Health Services and International Studies Working Committee, and conducts health services and policy research that requires different resources than CIBMTR working committee studies.
Examples of health services research focus areas include:
- Economic aspects of transplant
- Survivorship and quality of life among transplant recipients
- Teatment decision-making support for patients and health professionals
- Healthcare disparities in access to and outcomes of hematopoietic cell transplantation
The Health Services Research Annual Report provides comprehensive information on the program, activities, and publications.
Program Studies
Learn more about Health Services Research studies using the links below:
- Health Services Research: AcademyHealth, governing body for HSR
- Patient-Centered Research: Patient-Centered Outcomes Research Institute (PCORI)
- Request support for analysis of claims data, survey research, or qualitative (focus groups, interviews) research or propose a study/evaluation using the HSR Study Request Form.
- Join the American Society of Blood and Marrow Transplantation (ASBMT) HCT Value and health Economics or Survivorship SIGs
Completed Studies
| Costs of autologous and allogeneic hematopoietic cell transplantation in the United States: A study using a large national private claims database |
Published |
| Pilot study of patient out-of-pocket costs of hematopoietic cell transplantation* |
Published |
| Barriers to participation in hematopoietic cell transplant clinical trials for sickle cell disease |
Published |
| Barriers to accessing healthcare for rural transplant recipients |
Published |
| Allogeneic transplant physician and center capacity in the US |
Published |
| Evaluating patient satisfaction with the National Marrow Donor Program's Office of Patient Advocacy |
Published |
| The need for Essential Health Benefits for complex medical procedures: A case study of Medicaid coverage for transplant |
Submitted |
| Developing a patient centered HCT outcomes research agenda | Published |
| Hematopoietic cell transplantation multidisciplinary care teams: Burnout, moral distress and career satisfaction | Published |
| Physician and patient perspectives on palliative care in hematopoietic cell transplantation | Submitted |
| Easy-to-read informed consent forms for hematopoietic cell transplantation clinical trials (Blood and Marrow Transplant Clinical Trials Network 1205 Study) | Submitted |
| Individualized care plans for hematopoietic cell transplant survivors | Submitted |
| Translation of clinical research into practice: An impact assessment of the results from the Blood and Marrow Transplant Clinical Trials Network Protocol 0201 on unrelated graft source utilization | Submitted |
| Transplant provider and center factors and outcomes of hematopoietic cell transplantation | Submitted |
| Identifying hematopoietic cell transplantation housing and caregiver challenges and potential interventions | Submitted |
| Payer-partnered approach to community-based referral for hematopoietic cell transplantation (HCT) | Manuscipt in Progress |
*Conducted in collaboration with the Health Services and International Studies Working Committee.
Studies In Progress
| Cost-effectiveness analysis of allogeneic hematopoietic cell transplantation versus chemotherapy alone in patients with acute myeloid leukemia |
Data Analysis |
| Lower reimbursement and similar clinical outcomes in Medicare beneficiaries with outpatient and inpatient autologous hematopoietic cell transplantation (HCT) for multiple myeloma1 |
Data Analysis |
| Physician and coordinator unrelated donor search perceptions and practice survey (National Marrow Donor Program®/Be The Match® Histocompatibility Advisory Group) |
Data Collection |
| INSPIRE: A multicenter randomized controlled trial integrating health informatics in a scalable stepped care self-management program for survivors after hematopoietic cell transplantation2 |
Accrual |
| Access to transplant for patients with acute myelogenous leukemia in the state of Virginia3 |
Protocol Development |
| Patient perceptions of important clinical trials outcomes4 | Protocol Development |
| Hematopoietic cell transplantation survivorship clinic characteristics and care delivery models5 | Protocol Development |
Research conducted in partnership with: 1Kansas University; 2Fred Hutchinson Cancer Research Center and CIBMTR RCI BMT; 3University of Virginia; 4Fred Hutchinson Cancer Research Center; 5American Society of Blood and Marrow Transplantation Survivorship Special Interest Group
For further information, contact:
Ellen Denzen, MS
Senior Manager, Health Services Research, NMDP/Be The Match
Email: edenzen@nmdp.org
Phone: (612) 884-8562
