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Health Services Research

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Health Services Research

CIBMTR conducts Health Services Research that complements activities of the Health Services and International Studies Working Committee and the Late Effects and Quality of Life Working Committee, and requires different resources than CIBMTR Working Committee studies.

Examples of health services research focus areas include:

  • Value and health economics of transplant and cellular therapy
  • Healthcare disparities in access to and outcomes of transplant and cellular therapy
  • Survivorship, patient-reported outcomes, and quality of life among recipients of transplant and cellular therapy
  • Treatment decision-making for patients and health professionals
  • Translation of research into clinical practice

Learn more about health services research using the links below:

  • Health Services Research: AcademyHealth, governing body for HSR
  • Patient-Centered Research: Patient-Centered Outcomes Research Institute (PCORI)
  • Join relevant American Society of Transplant and Cellular Therapy Special Interest Groups: Value and Health Economics, Survivorship, Biobehavioral Research, Supportive and Palliative Care   

Propose a Study or Request Research Support

  • Propose a study or request support for analysis of claims data, survey research, or qualitative (focus groups, interviews) research using the HSR Study Request Form.

Completed Studies

Title Status​
Costs of autologous and allogeneic hematopoietic cell transplantation in the United States: A study using a large national private claims database Published
Pilot study of patient out-of-pocket costs of hematopoietic cell transplantation* Published
Barriers to participation in hematopoietic cell transplant clinical trials for sickle cell disease Published
Barriers to accessing healthcare for rural transplant recipients Published
Allogeneic transplant physician and center capacity in the US Published
Evaluating patient satisfaction with the National Marrow Donor Program's Office of Patient Advocacy Published

Variation in Medicaid coverage for hematopoietic cell transplantation 

Published

​Engaging patients in setting a patient-centered outcomes research agenda in hematopoietic cell transplantation

Published​

Burnout, moral distress, work-life balance, and career satisfaction among hematopoietic cell transplantation professionals

Published​

​What do transplant physicians think about palliative care? A national survey study 

Published​

​Easy-to-Read informed consent form for hematopoietic cell transplantation clinical trials: Results from the Blood and Marrow Transplant Clinical Trials Network 1205 Study.

Published​

Tailoring a survivorship care plan: Patient and provider preferences for recipients of hematopoietic cell transplantation.

Published​

​Randomized controlled trial of individualized treatment summary and survivorship care plans for hematopoietic cell transplantation survivors

Published​
​Translation of clinical research into practice: An impact assessment of the results from the Blood and Marrow Transplant Clinical Trials Network Protocol 0201 on unrelated graft source utilizationPublished​

​Patient housing barriers to hematopoietic cell transplantation: results from a mixed-methods study of transplant center social workers

Published​

​Caregiver availability and patient access to hematopoietic cell transplantation: social worker perspectives inform practice

Published​

​Information needs for treatment decision making of hematopoietic cell transplant patients 65 years or older and caregivers

Published​

​Transplant provider and center factors and outcomes of hematopoietic cell transplantation

Published​
​Payer-partnered approach to community-based referral for hematopoietic cell transplantation (HCT)Submitted

Reimbursement, service utilization, and outcomes of allogeneic hematopoietic cell transplantation for patients 65 and older with acute myeloid leukemia in Medicare

Submitted

​Health care reimbursement, service utilization, and financial burden among Medicare beneficiaries with myeloma receiving autologous hematopoietic cell transplantation in inpatient and outpatient settings1

Submitted​

​Perceptions, practice and service needs for hematopoietic cell transplant unrelated donor search and selection (National Marrow Donor Program®/Be The Match® Histocompatibility Advisory Group)

Submitted​

​Healthcare cost dynamics of adults with acute myeloid leukemia treated with allogeneic hematopoietic cell transplantation: 2004-2014

​Manuscript in Progress

*Conducted in collaboration with the Health Services and International Studies Working Committee.

1Research conducted in partnership with Kansas University


Studies in Progress

Title Status​

Characteristics of high- and low-performing allogeneic transplant centers

Protocol Development

​Patient perspectives on palliative care1

Protocol Development​

​Access to transplant for patients with acute myelogenous leukemia in the state of Virginia2

Protocol Development​

​Health care utilization and costs associated with patients with sickle cell disease enrolled in Medicaid

Protocol Development​

​Linking the Center for International Blood and Marrow Transplant Research (CIBMTR) Registry to the California Cancer Registry, Vital Statistics, and Hospital Patient Discharge database to study adverse effects and survival following hematopoietic cell transplantation3

Protocol Development​
INSPIRE: A multicenter randomized controlled trial integrating health informatics in a scalable stepped care self-management program for survivors after hematopoietic cell transplantation4 Accrual
​Patient perceptions of important clinical trials outcomes5Accrual

​Medicaid coverage for hematopoietic cell transplantation in sickle cell disease patients: A policy analysis

Accrual​

​Hematopoietic cell transplantation for older adults practice survey6

Data Collection​

Hematopoietic cell transplantation predictions for the Year 20237

Data Analysis​

Research conducted in partnership with: 1Massachusetts General Hospital, 2University of Virginia, 3California Cancer Registry, 4Fred Hutchinson Cancer Research Center and CIBMTR RCI BMT, 5Fred Hutchinson Cancer Research Center, 6Moffitt Cancer Center, and 7University of Florida.


For further information, contact:

Lih-Wen Mau, PhD, MPH
Investigator, Health Services Research Program
Email: lmau@nmdp.org
Phone: (763) 406-8497



 
 

Last Updated: 10/17/2019 3:59 PM
CIBMTR