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Health Services Research

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Health Services Research

CIBMTR conducts Health Services Research, which complements activities of the Health Services and International Studies Working Committee, and conducts health services and policy research that requires different resources than CIBMTR working committee studies.

Examples of health services research focus areas include:

  • Economic aspects of transplant
  • Survivorship and quality of life among transplant recipients
  • Teatment decision-making support for patients and health professionals
  • Healthcare disparities in access to and outcomes of hematopoietic cell transplantation

The Health Services Research Annual Report​ provides comprehensive information on the program, activities, and publications.

Program Studies

Learn more about Health Services Research studies using the links below:

  • Health Services Research: AcademyHealth, governing body for HSR
  • Patient-Centered Research: Patient-Centered Outcomes Research Institute (PCORI)
  • Request support for analysis of claims data, survey research, or qualitative (focus groups, interviews) research or propose a study/evaluation using the HSR Study Request Form.
  • Join the American Society of Blood and Marrow Transplantation (ASBMT) HCT Value and health Economics or Survivorship SIGs

Completed Studies

Title Status​
Costs of autologous and allogeneic hematopoietic cell transplantation in the United States: A study using a large national private claims database Published
Pilot study of patient out-of-pocket costs of hematopoietic cell transplantation* Published
Barriers to participation in hematopoietic cell transplant clinical trials for sickle cell disease Published
Barriers to accessing healthcare for rural transplant recipients Published
Allogeneic transplant physician and center capacity in the US Published
Evaluating patient satisfaction with the National Marrow Donor Program's Office of Patient Advocacy Published
The need for Essential Health Benefits for complex medical procedures: A case study of Medicaid coverage for transplant Submitted
​Developing a patient centered HCT outcomes research agendaPublished​
​Hematopoietic cell transplantation multidisciplinary care teams: Burnout, moral distress and career satisfactionPublished​
​Physician and patient perspectives on palliative care in hematopoietic cell transplantationSubmitted​
​Easy-to-read informed consent forms for hematopoietic cell transplantation clinical trials (Blood and Marrow Transplant Clinical Trials Network 1205 Study)Submitted​
​Individualized care plans for hematopoietic cell transplant survivors Submitted​
​Translation of clinical research into practice: An impact assessment of the results from the Blood and Marrow Transplant Clinical Trials Network Protocol 0201 on unrelated graft source utilizationSubmitted​
​Transplant provider and center factors and outcomes of hematopoietic cell transplantationSubmitted​
​Identifying hematopoietic cell transplantation housing and caregiver challenges and potential interventionsSubmitted​
​Payer-partnered approach to community-based referral for hematopoietic cell transplantation (HCT)Manuscipt in Progress​
Reimbursement analysis of hematopoietic cell transplantation in older patients with acute myeloid leukemiaManuscript in Progress

*Conducted in collaboration with the Health Services and International Studies Working Committee.


Studies In Progress

Title Status​
Cost-effectiveness analysis of allogeneic hematopoietic cell transplantation versus chemotherapy alone in patients with acute myeloid leukemia Data Analysis
Lower reimbursement and similar clinical outcomes in Medicare beneficiaries with outpatient and inpatient autologous hematopoietic cell transplantation (HCT) for multiple myeloma1 Data Analysis
Physician and coordinator unrelated donor search perceptions and practice survey (National Marrow Donor Program®/Be The Match® Histocompatibility Advisory Group) Data Collection
INSPIRE: A multicenter randomized controlled trial integrating health informatics in a scalable stepped care self-management program for survivors after hematopoietic cell transplantation2 Accrual
Access to transplant for patients with acute myelogenous leukemia in the state of Virginia3 Protocol Development
​Patient perceptions of important clinical trials outcomes4Protocol Development​
​Hematopoietic cell transplantation survivorship clinic characteristics and care delivery models5Protocol Development​

 Research conducted in partnership with: 1Kansas University; 2Fred Hutchinson Cancer Research Center and CIBMTR RCI BMT; 3University of Virginia; 4Fred Hutchinson Cancer Research Center; 5American Society of Blood and Marrow Transplantation Survivorship Special Interest Group


For further information, contact:

Linda J. Burns, MD
Health Services Research Program
Email: lburns2@nmdp.org
Phone: (763) 406-4273

 



 
 

Last Updated: 7/30/2018 8:52 AM
CIBMTR