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Health Services Research

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CIBMTR conducts health services research that complements activities of the Health Services/Donor Health and Safety Working Committee and the Morbidity, Recovery, and Survivorship Working Committee and requires different resources than CIBMTR Working Committee studies.

Examples of health services research include: 

  • Value and health economics of transplant and other cellular therapies
  • Healthcare disparities in access to and outcomes of transplant and other cellular therapies
  • Survivorship, patient-reported outcomes, and quality of life among recipients of transplant and other cellular therapies
  • Treatment decision-making for patients and health professionals
  • Translation of research into clinical practice

Learn more about health services research using the links below:

Studies

Studies in Progress

Title Status
Characteristics of high- and low-performing allogeneic transplant centers Protocol Development
​Patient perspectives on palliative care1 Protocol Development
Access to transplant for patients with acute myelogenous leukemia in the state of Virginia2 Protocol Development
Health care utilization and costs associated with patients with sickle cell disease enrolled in Medicaid Protocol Development
Linking the Center for International Blood and Marrow Transplant Research (CIBMTR) Registry to the California Cancer Registry, Vital Statistics, and Hospital Patient Discharge database to study adverse effects and survival following hematopoietic cell transplantation3 Protocol Development
INSPIRE: A multicenter randomized controlled trial integrating health informatics in a scalable stepped care self-management program for survivors after hematopoietic cell transplantation4 Accrual
Patient perceptions of important clinical trials outcomes5 Accrual
Medicaid coverage for hematopoietic cell transplantation in sickle cell disease patients: A policy analysis Accrual
Hematopoietic cell transplantation for older adults practice survey6 Data Collection​
Hematopoietic cell transplantation predictions for the Year 20237 Data Analysis​

Research conducted in partnership with: 1Massachusetts General Hospital, 2University of Virginia, 3California Cancer Registry, 4Fred Hutchinson Cancer Research Center and CIBMTR RCI BMT, 5Fred Hutchinson Cancer Research Center, 6Moffitt Cancer Center, and 7University of Florida.

Publications

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