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Join us for the Second PCOR symposium on December 2, 2016, in San Diego, California! Following the First Symposium at the 2016 BMT Tandem Meetings, six Working Groups were established, focusing on patient-centered topics: Patient, Caregiver and Family Education and Support; Physical Health and Fatigue; Emotional, Cognitive and Social Health; Sexual Health and Relationships; Models of Care Delivery / Survivorship and Late Effects; and Financial Burden.
Tasked with identifying patient-centered questions that lend themselves to comparative effectiveness clinical studies, Working Groups will present the results of their deliberations for feedback at this symposium. A panel of patients and caregivers will also discuss their engagement in the Working Groups.
Title: Prioritizing a PCOR HCT Research AgendaDate / time: Friday, December 2, from 5 to 10 pm (dinner served at 5 pm)Place: Legends Room, Hard Rock Hotel, San Diego (across from convention center)Register
Save the Date: The third (and final) PCOR symposium will be held during the 2017 BMT Tandem Meetings on Saturday, February 25, 2017, from 12:15 to 4:45 pm EST. Plan to attend to provide input into the proposed research agenda for patient-reported outcomes in HCT.
Palliative Care: An Unmet Need for PatientsWe need your input! The delivery of effective palliative care is an unmet need for patients with hematologic diseases and those undergoing transplant. The Health Services Research Program, in collaboration with the ASBMT Palliative Care Task Force under the leadership of Dr. Effie Petersdorf, is conducting a survey of physicians regarding perceptions and availability / utilization of palliative care options for their patients to inform future work. Be sure to watch your email inbox in the coming month for the survey. Your input is invaluable in this critical area.
Health Care Costs and UtilizationAdministrative claims databases provide information on costs and utilization, but without outcomes data, any interpretation of the value of transplant and / or non-transplant therapy is limited. We have recently completed merging a Medicare dataset from the Centers for Medicare and Medicaid (CMS) with CIBMTR outcomes data to create a unique dataset for exploring the value of therapy for older patients with AML and MDS. Additional projects include utilizing Optum data linked to the National Death Index to explore costs, utilization, and outcomes for patients with a variety of diseases for which transplant is indicated.
Save the date: The HCT Value and Health Economics Special Interest Group (SIG), in collaboration with the Administrator’s SIG, will be hold a combined session at the BMT Tandem Meetings on Friday, February 24, 2017, with an agenda that will appeal to everyone interested in addressing the numerous issues in quality and value that we’re grappling with in HCT. Stay tuned for more details.
AML WebinarAn AML educational webinar to support optimal timing of referral for HCT consultation and address survey-identified knowledge gaps is scheduled in November. It will be case-based with plenty of time for audience questions. Please join us, and advertise the webinars to your trainees, faculty, and referring physicians and clinics. CME will be offered at no cost.
Contact Ellen Denzen, MS, Senior Manager of Health Services Research with questions.