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Many transplant centers, unable to commit to the pilot at this time, expressed a preference to stay knowledgeable of the initiative’s progress and plans. In response, a DTI Community group has been established. The group meets monthly with the aim to provide relevant updates on the initiative, educate about technical aspects of the new model, and foster a community environment in which to exchange information and ideas helping to inform future decisions for both transplant centers and DTI.
The CIBMTR Data Transformation Initiative will focus initially on new methods for data collection. The Initiative's vision is to optimize the acquisition and utilization of entrusted data assets to accelerate breakthroughs that transform patient experiences. The CIBMTR has partnered with IQVIA, a company known worldwide for its expertise in building technology solutions customized for research networks engaged in complex data exchange. The CIBMTR will continue to own all data and the resulting new data ecosystem and technical solutions developed.
Work is already underway to inform the design and development of a prototype for data acquisition that will enable a "source to target" approach using electronic data capture for data that does not require clinical interpretation. The CIBMTR will pilot the prototype with a few initial sites and evaluate its performance together with the sites to inform future expansion of the prototype. Pilot partner sites for this work are currently being assessed as candidates for the pilot. The initiative will strive to identify as many as five sites that can install the prototype beginning in April for initial testing. Sites selected will represent the diversity of technology systems that comprise the network to ensure development work will be applicable for all sites in the future.
For more information or with any questions, please email DT@nmdp.org.
IQVIA is a leading global provider of information, innovative technology solutions, and contract research services focused on helping healthcare clients find better solutions for patients. Formed through the merger of IMS Health and Quintiles, IQVIA applies human data science — leveraging the analytic rigor and clarity of data science to the ever-expanding scope of human science — to enable companies to reimagine and develop new approaches to clinical development and commercialization, speed innovation, and accelerate improvements in healthcare outcomes. Powered by the IQVIA CORE™, IQVIA delivers unique and actionable insights at the intersection of large-scale analytics, transformative technology, and extensive domain expertise as well as execution capabilities. With more than 55,000 employees, IQVIA conducts operations in more than 100 countries. To learn more, visit www.IQVIA.com.