The extensive clinical data in the CIBMTR Research Database is available upon request to anyone in the United States or worldwide.

Request data based on the type of information you need:

• Data submitted by your center

  CIBMTR member centers can access data they have submitted to CIBMTR through the Web-based Data Back to Centers application.

• Data for a research study

  Investigators interested in data for observational research can propose a study or participate in one of many existing studies.

Investigators interested in Health Services Research requiring data not available in the CIBMTR registry can propose a study or request support for health economic (cost and utilization, cost-effectiveness), survey or qualitative (focus groups, interviews) research consultation.

• Data for a corporate analysis

  CIBMTR Corporate Members can request data using the online Corporate Member Information Request Form.
  
  Patients: Contact your healthcare provider immediately for reports of problems with your treatment or problems with products received for your treatment. The CIBMTR uses de-identified data and is unable to associate reported treatment problems, adverse events, or corrections of information with a center, clinical trial or healthcare provider.  
  
  

• Data for a one-time, custom analysis

  Investigators, physicians, patients and others interested in hematopoietic cell transplantation (HCT) can request CIBMTR data using the Custom Information Request Form.
  
  Patients: Contact your healthcare provider immediately for reports of problems with your treatment or problems with products received for your treatment. The CIBMTR uses de-identified data and is unable to associate reported treatment problems, adverse events, or corrections of information with a center, clinical trial or healthcare provider.  
  
  
  • Requests can include descriptive statistics describing the population of interest and/or a univariate analysis of overall survival.
  • Requests related to patient care and clinical decision-making are free of charge and receive highest priority.
  • Most results can be provided within 2 business days to three weeks, depending upon complexity.
  • If you intend to use requested data in a publication, please submit a Publication Permission Request Form.

Questions

If you have questions about requesting CIBMTR data, please contact inforequest@mcw.edu.