Types of Data Available for Research or Request

The CIBMTR Research Database contains hematopoietic cell transplantation (HCT) data for recipients and their donors. CIBMTR collaborates with centers from around the world to collect clinical data from allogeneic and autologous transplants performed worldwide, including nearly all allogeneic transplants and approximately 80% of the autologous transplants performed in the U.S.

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Data available for research purposes
Data available for request

Data available for research purposes

CIBMTR supports investigators in conducting HCT observational studies. Data available for this research includes:

Baseline recipient data

Diagnosis – disease subclassification or histology, stage at transplant, cytogenetics, molecular markers, pre-HCT disease treatment
Demographic – socioeconomic information, gender, age, race/ethnicity
Transplant procedure – HLA typing, conditioning regimen, graft source, mobilization, T-cell depletion and other graft manipulation
Clinical – coexisting diseases, pre-HCT infection, HCT history

Baseline donor data

Demographics
HLA typing
Infectious diease markers
Pre-donation CBC and differential
Pre-donation toxicities
Filgrastim administration

Follow-up recipient data

Collected at 100 days, 6 months and annually after HCT:

Transplant outcomes:
- survival
- neutrophil and platelet engraftment
- acute and chronic GVHD
- relapse
GVHD prophylaxis
Immune reconstitution
Chimerism
Infection
Organ function
Subsequent HCT or DCI
New malignancy
Cause of death

Follow-up donor data

Collected at 2 days, 1 week and weekly until donor reports full recovery, then at 1 month, 6 months and annually after donation:

Donor outcomes – post-donation CBC and differential, post-donation toxicities, adverse events
Product analysis – cell counts, viability, volume

Investigators are welcome to view the data collection forms and the Data Management Manual for more information on the collection of recipient and donor data.

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Data available for request

To aid in clinical decision-making, protocol development or other data-specific needs, CIBMTR offers access to descriptive statistics for populations of interest and/or a univariate analysis of overall survival. These data are available to investigators, physicians, corporations, and individuals worldwide upon request.