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Consumer Advocacy Committee

Sharing knowledge. Sharing Hope.
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Consumer Advocacy Committee

The Consumer Advocacy Committee provides valuable patient and donor perspectives for the development of the CIBMTR research agenda.


  • Provide a consumer perspective on the CIBMTR research agenda through participation in Working Committees and RCI BMT
  • Provide input to CIBMTR on adapting hematopoietic cell transplantation (HCT) research publications for use by the general public
  • Promote awareness among patients regarding research opportunities
  • Advise the CIBMTR on ways to increase patient participation in research
  • May submit research ideas to appropriate Working Committees


Members are appointed by the Advisory Committee, based on recommendations from a CIBMTR application review panel, and include:

  • Nine voting members who serve for up to two consecutive three-year terms. These members are involved with HCT either as a patient, caregiver, family member, donor or staff person / volunteer with an agency that interacts with HCT patients or donors
  • Ex-officio members from CIBMTR, the National Marrow Donor Program® (NMDP)/Be The Match® and the Health Resources and Services Administration (HRSA)

In addition, committee membership strives to represent a diversity of backgrounds, including persons who:

  • Understand adult and / or pediatric HCT issues
  • Are familiar with cord blood transplantation
  • Have been or understand the needs of a related and / or unrelated donors
  • Understand issues that affect access to or outcomes of HCT secondary to demographics and diversity
  • Do not have access to the Internet, or are aware of how people without access to the Internet get their information
  • Are actively involved in HCT-related research
  • Have marketing, communications or professional writing experience


  • The Consumer Advocacy Committee meets annually at the Tandem Meetings of ASTCT & CIBMTR and periodically via conference calls
  • Works on CAC projects, beyond teleconferences, as needed
Jack Aiello, EE, MS​San Jose, CA
Bryce Waldman
Chicago, IL


​Nicole Adams​San Angelo, TX
​Jonathan (Reid) Besch
​Franklin, TN
​Rebecca HigginsFroedtert Hospital, Milwaukee, WI
​Robert Lisac
​Jacksonville, FL
​Brandon Nuechterlein
​University of Colorado, Aurora, CO
Dimas Padilla ​Winter Garden, FL
Jennifer Wilder National Institutes of Health, Bethesda, MD

Scientific Director
J. Douglas Rizzo, MD, MS CIBMTR MCW, Milwaukee, WI

Carol Doleysh, BS (CIBMTR liaison) CIBMTR MCW, Milwaukee, WI
Jackie Foster, MPH, RN, OCN
(NMDP liaison) NMDP/Be The Match, Minneapolis, MN
Mary Hengen, MBA
CIBMTR NMDP, Minneapolis, MN
​Jennifer Motl​CIBMTR MCW, Milwaukee, WI
​Meggan McCann, MPH
​CIBMTR NMDP, Minneapolis, MN
​Mary Senneka
​NMDP/Be The Match, Minneapolis, MN
Marilyn Levi, MD​Health Resources and Services Administration, Rockville, MD
Bronwen Shaw, MD, PhD ​CIBMTR MCW, Milwaukee, WI
​Nawraz Shawir, MBBSHealth Resources and Services Administration, Rockville, MD
Patricia Steinert, PhD, MBA ​CIBMTR MCW, Milwaukee, WI

Last Updated: 7/12/2021 4:10 PM